To be diagnosed with epilepsy a person must have had unprovoked, and usually repeated, epileptic seizures. A seizure is epileptic if it presents in a typical manner and is the result of abnormal brain activity. Epilepsy is usually treated with medication and involves several years of contact with health care services. It is esti-mated that between 60 000 and 70 000 people have epilepsy in Sweden, and that at least 7 000 people are examined for epilepsy each year.
People with epilepsy continuously run the risk of having a sudden epileptic seizure, which often results in the loss of control and an accompanying concern that a seizure will happen at an inappropriate time. People who have epilepsy are not always aware of their seizures; they don’t know what their seizures look like, and how others around them will react. Epilepsy can have serious or even fatal consequences. Examinations are not always able to clearly identify what causes the seizures, and available treatments rarely cure, but rather reduce or take away the symptoms. Treatments are often accompanied by side effects. Decisions in the diagnosis and treatment process must be made together with that individual, and their parents or guardians, in the case of children or young people. Treatment risks should always be weighed against the potential benefits to the individual. Epilepsy affects not only the lives of the person with epilepsy, but the lives of their entire family – not in the least for children and young people with epilepsy. Many with epilepsy have other disabilities, most commonly intel-lectual disabilities. These people and their families often need social support services.
The methods that were assessed in this HTA-report, involve diagnostics, pharmaceutical treatments, sur-gical treatments and some other treatments. It was conducted in accordance with SBU’s methodology (www.sbu.se).
presents a comprehensive, systematic assessment of available scientific evidence. The certainty of the evidence for each finding is systematically reviewed and graded. Full assessments include economic, social, and ethical impact analyses.
SBU assessments are performed by a team of leading professional practitioners and academics, patient/user representatives and SBU staff. Prior to approval and publication, assessments are reviewed by independent experts, SBU’s Scientific Advisory Committees and Board of Directors.